Interactive Speaker

Jelena Malinina is a Data Director in EURORDIS – the European Organisation for Rare Diseases . Her role is to lead work on data and represent rare disease patient voice in digitalisation of healthcare. Prior to joining EURORDIS, Jelena worked for the European Consumer Organisation, the World Health Organisation, healthcare consultancy, patient organisations and governmental public health organisation. Jelena is a member of the European Commission’s ehealth Stakeholder Working Group and a member of the External Advisory Board of the HealthData@EU Pilot project.